Registration - Organization

Cystic Fibrosis Canada / Kelly Grover, President and CEO

Registration Information

Organization name: Cystic Fibrosis Canada
Senior Officer Name: Kelly Grover, President and CEO
Senior Officer Change History
Initial registration start date: 2016-05-04
Registration status: Active
Projected end date: No date provided
Registration number: 1476-1197

Associated Lobbying Activity Reports

Total number of Lobbying Activity Reports: 12

Lobbying Activity Reports - last 6 months: 0

Version 15 of 15 (2023-12-12 to present)

Registration versions:

Version 15 of 15 (2023-12-12 to present)

Lobbying Information

Subject Matter of the Lobbying Activities

Details Regarding the Identified Subject Matter

Will any of the lobbyists listed within this registration arrange a meeting between a public office holder and any other individual for the purpose of attempting to influence any of the matters listed below:

Yes

Specific Topics of Lobbying Communications	Intended Outcomes	Associated Subject Matters
We are calling on the BC government to ensure that CF modulator and symptom management drugs are available and affordable for all who need them.	Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Health

BC Ministries/Provincial Entities

Provincial Health Services Authority

Organization Details

Senior Officer Name and Position during the Period of this Registration

Kelly Grover, President and CEO

Organization Contact Information

Cystic Fibrosis Canada

Address:
2323 Yonge St.800
8th Floor
Toronto, ON M4P 2C9
Canada

Telephone number: 647-268-0237
Fax number: 416-485-5707

Description of Activities

Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.

Gifts or benefits provided by the organization

Gifts or Benefits Provided to Public Officer Holders
Name	Gift or Benefit Description	Circumstance	Date Promised	Value Promised	Date Given	Value Given
No Records

Contributors to the Lobbying Activity

No person or organization contributed over $1000CDN, within the preceding 12 months, toward the lobbying activity on behalf of the organization that has a direct interest in the outcome of the lobbying activity.

Government Funding in the Last 12 Months

Received Government Funding

The Received Government Funding table below is not intended to be additive. Adding all of the entries together does not necessarily provide an accurate sum of all government funding received. There may be redundancy (reporting of the same funding more than once) caused by overlap in the "Date/Period Received" between 2 or more entries.

Source of Government Funding	Funding Received	Date/Period Received
ESDC	$21,350.00	2023-01-01 to 2024-12-31

View all received government funding history

Coalition Members Information

Cystic Fibrosis Canada is not a coalition member.

Affiliates with a Direct Interest in the Outcome

Cystic Fibrosis Canada does not have any affiliates that could have a direct interest in the outcome of the lobbying activities

Other Persons or Organizations with Direct Interests

The activities of Cystic Fibrosis Canada are not controlled or directed by another person or organization with a direct interest in the outcome of this undertaking.

Lobbyists Details

Lobbyists Employed by this Organization

Lobbyist

Contributions

Paul Eckford
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No