Lobbying Activity Report

1197-9882

Organization: Cystic Fibrosis Canada
Associated registration: 1476-1197-9
Lobbying Activity date: 2021-04-26
Arranged a meeting: No
Posted date: 2021-06-10

In-house lobbyists who participated in the lobbying activity: Sandra Niven
Senior Public Office Holders who were lobbied in this activity: Rick Glumac, MLA Port Moody-Coquitlam
Health
 
Subject Matter of the Lobbying Activity
Specific Topics of Lobbying Communications Intended Outcomes Associated Subject Matters
We are calling on the BC government to fund Trikafta immediately upon Health Canada approval with the broadest prescribing criteria possible and to fund Kalydeco and Orkambi immediately upon Health Canada approval of Trikafta with the broadest prescribing criteria possible.
To improve the quality of CF care through the implementation of an integrated, provincial program for cystic fibrosis, including access to mental health services.
  • Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity
Health
 
Senior officer who filed this Lobbying Activity Report: Kelly Grover
 
The above name is that of the most senior paid officer who is responsible for filing a Lobbying Activity Report for the organization (the Designated Filer), whether that person participated in this lobbying activity or not.

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