This version of the registration was submitted prior to the Lobbying Transparency Act coming into force on May 4, 2020. Due to different information requirements at that time, the registration is presented in the following format.
Registration ID: 809045
Submitted by lobbyist on: July 18, 2018 07:35:53 AM
Accepted by Registrar on: July 18, 2018 07:46:51 AM
Designated Filer Information
| Grover, Kelly |
| Cystic Fibrosis Canada Cystic Fibrosis Canada, 2323 Y | |
|
Toronto, ON, M4P 2C9
|
416-485-9149 |
| Canada |
Organization Information
| Cystic Fibrosis Canada |
| Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada. |
| 2323 Yonge Street 8th Floor | |
|
Toronto, BC, M4P 2C9
|
416-485-9149 |
| Canada |
Relevant Affiliates
Type:
| Business Name | Mailing Address | Contact Information |
|---|---|---|
| Canadian Coalition for Genetic Fairness |
151 Frederick St, Suite 400
Kitchener, ON N2H 2M2 Canada |
Phone: 800-998-7398 |
| Canadian Organization for Rare Disorders (CORD) |
151 Bloor Street West, Suite 6
Toronto , ON M5S 1S4 Canada |
Phone: 416-969-7464 |
| Episodic Disabilities Network |
1240 Bay Street, Suite 600
Toronto, ON M5R 2A7 Canada |
Phone: 416-513-0440 |
| Health Charities Coalition of Canada |
Annex D, 41 Empress Ave
Ottawa, ON K1R 7E9 Canada |
Phone: 613-440-4411 |
Government or Government Agency Funding
| Name of Funding provider | Amount in CAD$ |
|---|---|
| BC Ministry of Health | $230,000.00 |
| Provincial Health Services Authority | $80,000.00 |
Other Controlling or Directing Interests
Active Registration Period
| July 18, 2018 | |
| January 18, 2019 |
Organization's In-House Lobbyists
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BC Public Office Background
Lobbying Activities
Health
Development, establishment, amendment or termination of any program, policy or decision
Patient group submission to PharmaCare Review for Orkambi. PharmaCare patient group submission on Orkambi, developing and developing and implementing an integrated care model for CF.
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Minister | Dix, Adrian | Minister of Health | July 18, 2018 |
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BC Public Office Background
Lobbying Activities
Health
Development, establishment, amendment or termination of any program, policy or decision
Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Minister | Dix, Adrian | Minister of Health | July 18, 2018 |
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BC Public Office Background
Lobbying Activities
Health
Arranging meeting between an individual and a public office holder for purpose of lobbying
Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Minister | Dix, Adrian | Minister of Health | July 18, 2018 |
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BC Public Office Background
Lobbying Activities
Health
Development, establishment, amendment or termination of any program, policy or decision
Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi, developing and implementing an integrated care model for CF, developing and implementing a mental health strategy for CF
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Minister | Dix, Adrian | Minister of Health | July 18, 2018 |
| Public Agency | Provincial Health Services Authority | July 18, 2018 |
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BC Public Office Background
Lobbying Activities
Health
Development, establishment, amendment or termination of any program, policy or decision
Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Minister | Dix, Adrian | Minister of Health | July 18, 2018 |