Review Registration - Organization

This version of the registration was submitted prior to the Lobbying Transparency Act coming into force on May 4, 2020. Due to different information requirements at that time, the registration is presented in the following format.

Registration ID: 809045
Submitted by lobbyist on: July 18, 2018 07:35:53 AM
Accepted by Registrar on: July 18, 2018 07:46:51 AM

Designated Filer Information

Grover, Kelly  
Cystic Fibrosis Canada Cystic Fibrosis Canada, 2323 Y  
Toronto, ON, M4P 2C9
416-485-9149
Canada  

Organization Information

Cystic Fibrosis Canada  
Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.
2323 Yonge Street 8th Floor  
Toronto, BC, M4P 2C9
416-485-9149
Canada  

Relevant Affiliates

Type:

Business Name Mailing Address Contact Information
Canadian Coalition for Genetic Fairness 151 Frederick St, Suite 400
Kitchener, ON
N2H 2M2
Canada
Phone: 800-998-7398
Canadian Organization for Rare Disorders (CORD) 151 Bloor Street West, Suite 6
Toronto , ON
M5S 1S4
Canada
Phone: 416-969-7464
Episodic Disabilities Network 1240 Bay Street, Suite 600
Toronto, ON
M5R 2A7
Canada
Phone: 416-513-0440
Health Charities Coalition of Canada Annex D, 41 Empress Ave
Ottawa, ON
K1R 7E9
Canada
Phone: 613-440-4411


Government or Government Agency Funding


Name of Funding provider Amount in CAD$
BC Ministry of Health $230,000.00
Provincial Health Services Authority $80,000.00

Other Controlling or Directing Interests

The organization has no other controlling or directing interests.

Active Registration Period

July 18, 2018  
January 18, 2019  

Organization's In-House Lobbyists

 



Name: Grover, Kelly
 
July 18, 2018  
Inactivation Date: January 28, 2019

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

Patient group submission to PharmaCare Review for Orkambi. PharmaCare patient group submission on Orkambi, developing and developing and implementing an integrated care model for CF.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Dix, Adrian Minister of Health July 18, 2018

Name: Ketelaars, Shannon
 
July 18, 2018  
Inactivation Date: January 28, 2019

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Dix, Adrian Minister of Health July 18, 2018

Name: Mariglia, Eric
 
July 18, 2018  
Inactivation Date: January 28, 2019

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Arranging meeting between an individual and a public office holder for purpose of lobbying

Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Dix, Adrian Minister of Health July 18, 2018

Name: Steele, Kim
 
July 18, 2018  
Inactivation Date: January 28, 2019

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi, developing and implementing an integrated care model for CF, developing and implementing a mental health strategy for CF

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Dix, Adrian Minister of Health July 18, 2018
Public Agency Provincial Health Services Authority July 18, 2018

Name: Wallenburg, John
 
July 18, 2018  
Inactivation Date: January 28, 2019

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

Improved access to CF medicines, patient group submission to PharmaCare review of Orkambi

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Dix, Adrian Minister of Health July 18, 2018