This version of the registration was submitted prior to the Lobbying Transparency Act coming into force on May 4, 2020. Due to different information requirements at that time, the registration is presented in the following format.
Registration ID: 27708954
Submitted by lobbyist on: May 4, 2016 12:32:30 PM
Accepted by Registrar on: May 12, 2016 10:29:34 AM
Designated Filer Information
| Beauchamp, Norma |
| 2323 Yonge Street | |
|
Toronto, ON, M4P 2C9
|
416-485-9149 |
| Canada |
Organization Information
| Cystic Fibrosis Canada |
| Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada. |
| 2323 Yonge Street | |
|
Toronto, ON, M4P 2C9
|
416-485-9149 |
| Canada |
Relevant Affiliates
The client has no relevant affiliates.
Government or Government Agency Funding
The organization does not receive any funding from a government or government agency.
Other Controlling or Directing Interests
The organization has no other controlling or directing interests.
Active Registration Period
| May 4, 2016 | |
| October 31, 2016 |
Organization's In-House Lobbyists
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BC Public Office Background
This individual has not held any public office positions in BC.
Lobbying Activities
Health
Development, establishment, amendment or termination of any program, policy or decision
We are advocating for public coverage of a new cystic fibrosis drug, ivacaftor/lumacaftor (brand name, Orkambi).
Target Contacts
| Target Type | Name | Title or Constituency | Date Added |
|---|---|---|---|
| Staff of Minister | Minister of Health | May 6, 2016 | |
| Public Agency | Health | May 6, 2016 |